General CJD project information

Project name

Creutzfeldt-Jakob disease surveillance

Project abbreviation

CJD

Project code

HDBP0040

Primary organization that oversees implementation of project

• Sciensano

Partner organization participating in project

• Not available

Organization that commissioned this project

• Not available

Organization providing monetary or material support

• National Institute for Health and Disability Insurance (RIZIV-INAMI)

Brief project description

In 1998, following the detection of variant Creutzfeldt-Jakob disease (vCJD) in the UK, Belgium installed a surveillance system for Creutzfeldt-Jakob disease (CJD). The objectives of this system were to identify vCJD cases and detect increases in CJD incidence. Diagnostic confirmation of CJD is based on autopsy after referral by neurologists. Reference centres perform autopsies and report to the surveillance system.

Regulatory framework of this project

Consult the regulatory framework information published on the fair.healthdata.be pages.